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Living with Parkinson’s Richard Grimmett’s journey of resilience and adventure

Recognising the early signs of Parkinson’s

Richard Grimmett refuses to let Parkinson’s define him. His story is one of resilience, optimism and a commitment to living life to the fullest.

Richard first noticed symptoms of Parkinson’s at 47. His arms stopped swinging when he walked, he struggled to get cards out of his wallet and his sense of smell and memory were affected. At the time he was working as a funeral director in Ocean Grove.

With a family history of Parkinson’s, his father, uncle and brother had all been diagnosed, Richard and his wife Heather recognised the signs early. Although Parkinson’s brought uncertainty they found comfort in knowing that it was possible to lead a full and active life.

Getting a Parkinson’s diagnosis and planning for the future

Richard was certain he had Parkinson’s and took proactive steps to seek a diagnosis. However his GP was hesitant to refer him to a neurologist, concerned that the side effects of medication might be worse than his symptoms at the time.

Richard recalls being asked, “Do you really want to know if you have got Parkinson’s?”. After careful thought he decided that treatment was the best way forward to maintain his quality of life.

For the first five years after his diagnosis Richard continued working and living as he had been. Knowing that Parkinson’s is progressive he and Heather made the decision to travel while he was still able. They embarked on the overseas trips they had always dreamt of embracing their philosophy of not putting off the things they wanted to do.

A passion for adventure and writing

Richard’s adventurous spirit led him to take on the Great Ocean Walk a solo eight day hike from Apollo Bay to the Twelve Apostles. He documented his experience through photos and diary entries later turning them into a book titled Great Ocean Walk with Parkinson’s Apollo Bay to the Twelve Apostles in Eight Days.

In his book he shares his experiences, encounters with wildlife, conversations with fellow travellers and his reflections on life. More than just a travel journal the book is a testament to resilience, personal growth and the power of reconnecting with nature. He inspires readers with his mantra “With courage and determination every hill can be climbed”.

“With courage and determination every hill can be climbed.”

Raising awareness and supporting the Parkinson’s community

Richard is known for his positive and proactive approach to Parkinson’s. A strong advocate for Parkinson’s awareness he became involved in fundraising, community events and initiatives to support others living with Parkinson’s.

His passion for connection led him to host a radio show on a network for the global Parkinson’s community. Through music and conversation he empowered others to stay positive and engaged.

Navigating change and staying positive

Seven years ago Richard underwent deep brain stimulation (DBS) surgery which greatly improved his movement. However as time passed fatigue and cognitive symptoms became more challenging. Eventually he made the difficult decision to sell his business and medically retire.

Despite these changes Richard remains committed to living life with optimism. He finds joy in the small things and hopes to inspire others to make the most of every day.

Richard and Heather are also incredibly grateful for the love and support of their family, friends and community. 

Finding inspiration in Richard’s journey

We thank Richard and Heather for sharing their inspiring story. If you would like to read Great Ocean Walk with Parkinson’s Apollo Bay to the Twelve Apostles in Eight Days please email info@fightparkinsons.org.au.

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